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"Rehabilitation is tiring, but I want to grow up healthy" | Our Story with DMD ㆍ Issue 1
日期:2023-10-26 浏覽次數:103

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"Ruirui, what is the biggest gain from using a standing stand?"

"Don't always fall like before."

Hearing such an answer, we feel very sad in our hearts

At the same time, I also felt the difficulty of every DMD patient.

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In February 2022, Ruirui embarked on his rehabilitation journey, which was also his first time standing on a stand. At that time, he shyly said, "I'm not used to it. I'm a bit tired standing on it, and it hurts when the straps are tight."



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At first, he was not very accustomed to this "big guy".


  Later on, I found out that standing on it can help me walk and prevent me from falling more. Because the design of its standing stand combines the development laws of human movement, it can help these DMD patients relearn various movements such as sitting, standing, stepping, and walking, and achieve stability, allowing them to maintain body balance. Therefore, many rehabilitation patients choose to stand for long-term rehabilitation training after early diagnosis.


So Ruirui officially entered the rehabilitation training stage.



  During this rehabilitation period, we provided professional rehabilitation guidance for Ruirui: urging parents to take photos and clock in every day, filling out logs regularly, tracking rehabilitation progress, actively participating in our rehabilitation lectures and offline activities

In September 2022, it had been 7 months since Ruirui used a standing stand for rehabilitation. When we revisited Ruirui again, his condition clearly improved.



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  "We feel that his standing posture is better now than before. His legs used to be bloated and he didn't have any strength, but now he has some strength," said Ruirui's father excitedly, sharing his joy with us.

  Besides having strength in the legs,In the follow-up, we found that using a standing stand not only corrected Ruirui's lower limbs correctly, but also changed his lifestyle habits.


  Due to the 12 adaptive adjustment structural devices of the standing stand, precise matching can be achieved for both sitting and standing positions of the child, allowing Ruirui to achieve various posture movements. After long-term exercise, Ruirui's cardiovascular function, urinary system, sleep, and psychological disorders have improved compared to before.

  "I love this small table board the most. I can sit here and watch TV, read books, and eat by myself." On the stand, a table board has been specially designed for them to complete various activities such as eating, drinking water, and studying on their own, so that the sick children can always maintain the correct posture and prevent and correct deformities at any time.


  Now Ruirui has started to adapt to this big guy.

Just as the family was full of hope for their future recovery journey, in March 2023, Ruirui suffered a bone fracture due to lack of play, which posed certain difficulties in treatment. However, Ruirui always comforted his parents, "I'm fine, I'm not afraid of pain, I believe I can recover.".



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  Under the guidance of the doctor, Ruirui endured the pain and carried out daily rehabilitation training. After a fracture, the affected limb and body suddenly transition to a stationary state, which can easily lead to "limb disuse syndrome", causing rapid loss of muscle mass, muscle contracture, and related joint adhesion and contraction at the fracture site. If limb disuse syndrome occurs, even if the fracture site reaches clinical healing, the affected limb will lose some function and experience partial disability. So during treatment, we recommend continuing to use a standing stand because it can ensure that the fracture site is stimulated by stress under the correct force line, accelerate the healing time of the fracture site, avoid joint and muscle contractures, and lay a foundation for walking

  After difficult rehabilitation treatment, Ruirui was successfully discharged from the hospital. "Although rehabilitation is tiring, I want to grow up healthier so that I can play with other children."





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