To improve medical standards, promote the exchange of medical education and scientific research information, and ultimately promote the protection of the interests of patients with spinal muscular atrophy (SMA). In 2022, the standardized training project for spinal muscular atrophy (SMA) rehabilitation management, organized by the China Primary Health Care Foundation and sponsored and supported by iFlytek iBo Intelligence and Bojian Biotechnology (Shanghai) Co., Ltd., is proceeding smoothly. This project has invited dozens of top domestic experts to form a special committee, based on the "Consensus of Rehabilitation Management Experts for Spinal Muscle Atrophy (2022 Edition)" to write training materials, and carry out relevant training work nationwide to promote the development of spinal muscular atrophy rehabilitation in China.

  On October 13, 2023, the "Finalization and Release Conference of SMA Rehabilitation Training Textbooks" was successfully held in Guangzhou. The content of the textbooks mainly includes rehabilitation assessment, rehabilitation goal setting, rehabilitation treatment suggestions, and drug intervention, laying a solid foundation for a series of standardized training activities to be carried out nationwide in the future.

  Since the launch of the project, the issue of SMA rehabilitation has been of great concern. Spinal muscular atrophy (SMA) is an autosomal recessive inherited disease that affects individuals regardless of gender, race, or age. Babies with SMA may experience symptoms such as muscle weakness and atrophy, which worsen with age. The body gradually loses various motor functions, and even cannot breathe and swallow. Severe cases may die of respiratory failure before the age of 2.

  At present, SMA is a serious single gene genetic disease that causes death and disability, known as the "number one genetic disease killer" of infants and young children, and there is no cure. The most common drugs and physical therapy methods currently available in the market can help patients alleviate symptoms, improve quality of life, and delay disease progression.